Never Give Up

 November came and went- Boston happened, my complete and total mental breakdown happened and then the last 24 hours happened. Everything in between is a bit of a blur already so I am looking forward to getting this update out.

Let me start with Boston. Derrick and I took Charlie and Ralph to Boston to see Dr. Heather Olson at Boston Children's Hospital- what should have been a 2 hour appointment ended up being over 4 hours. We learned about CDKL5 mutations and their theories of why some people with this mutation can be pathogenic (disease causing). They listened to our story and analyzed the boys physical appearance and strength- they are trying to figure out a way to measure severity and trajectory. They are part of two studies under Dr Olson that will track their progress. In true Charlie fashion he had a seizure in front of the doctors which was a relief- finally someone who has studied this is seeing this in real life. We ended the appointment by talking treatment options. We left feeling grateful we had the chance to meet the doctor publishing a lot of the research papers, but discouraged in the sense there was still very little hope in medications which meant no relief from the living hell we were experiencing. The ones presented to us had far greater risks to us than the chance that it would even stop their seizures. Prior to Boston we were pretty dead set on the Ketogenic diet and CBD- Dr. Olson supported this... to an extent. In fact just last week she called me wanting to put the boys in another study that would analyze their gut microbiome before and after keto. For those that are reading this and thinking why Keto? It has proven to be effective at treating certain types of epilepsy that don't respond to medicines. 

We tried to make the best out of our trip to Boston- it was good for us all.

We got home and the stress at work was building up, I had so much paperwork to do for the boys, Otto and Lucia were beginning to act out in jealousy of the twins, my marriage was struggling, I was spending all of my free time researching anything and everything to find something to put an end to the daily seizures and then I came to the realization that everything that was going on with the boys was somehow related to vaccines and my entire world got rocked.

I lost it. And up until the last 24 hours I was still a basket case... I mean I am still not mentally well but no one has locked me up yet so there's that.

I know what you are thinking... how could a rare genetic mutation that was classified as "pathogenic" that has ALL of the symptoms the boys are having be caused by a vaccine? Well it's because they are having an adverse reaction (which happen ALL THE TIME. google it) to the vaccines they received. There is no denying their CDKL5 mutation plays a role in all of this. DNA is our DNA we can't change that but some people are genetically more sensitive to things which means that a vaccine full of things that don't belong in an infants body, reacted to their mutation on their very important gene and wrecked havoc in their bodies. I also believe that they contracted hepatitis B from their vaccine. And I will save that for another day, because this is a lot to take in... which is exactly why I had a mental breakdown. I have vaccinated all of my kids, Derrick and I are vaccinated for Covid... I am not an anti vaxer. But there is no doubt in my mind that they were healthy until they were given their first vaccine, and then slowly after each one after that things started getting worse. 

The last 10 months have been so hard. Watching two of your children seize in front of your everyday, sometimes multiple times a day, all day long is a pain that is unbearable. I really don't know how to put the pain into words. I spent a lot of time crying, begging for God to help, reflecting... usually all while on my bathroom floor crying. Sometimes I would have to drive in my car so I could scream "why"at the top of my lungs because this was heartbreaking. It wasn't fair. 

I wasn't satisfied with what the doctors were telling us. So I researched everything and anything on how to reverse the damage from their vaccines. I won't even tell you all of the things I have subject my entire family to over the last 3 months (all non-harmful I promise) but IYKYK. I was not going to give up. There was nothing I wasn't going to do to spare them from a life of pain and huge setbacks.

My intuition tells me that I'm onto something. I found a women named Karen Hurd who saved her own daughters life. I have spent the past 24+ hours researching her and her story and her protocol. I took her entire 6 hour e-course all while being home with my kids. The things that have happened, the people I have connected with there is no doubt this is Gods work. He is trying to help me get those miracles we have all been praying for.

So tomorrow we start the Living Well Protocol aka The Bean Protocol with Karen Hurd herself! 

Bean Protocol?? Yes. I plan on saving their lives through diet... specifically beans and NO SUGAR ever not even fruit sugar! 

I'll leave you with the words of the wise Hippocrates, "Let thy food be thy medicine and medicine be thy food."