Bean Update!
We started the bean protocol/ Living well protocol with nutritionist Karen Hurd on December 4th… a little over a month ago. Charlie has been quick to respond to the diet whereas Ralph has been slower to respond and required a few tweaks. While their disease severity has always been identical (as you’d figure for identical twins) Ralph had developed LGS like seizures prior to the diet and was regressing. Prior to the diet Ralph was labeled as severe/moderate by their drs. He was rolling onto his side but has stopped doing that. He also astopped moving his arms and legs, and his seizures increased big time. He started having so many it was overwhelming to count, so I didn’t. Derrick would try and our nanny too but who really knows. He started having seizures during the night and everyday he babbled less and less until the only time he made a sound was when he cried. We panicked because he seemed to have been getting worse because of the diet. It blew our minds that identical twins a...
