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Hi! We are the Klein family. I’m Ashley and together my husband Derrick and our four children have embarked on a journey none of us signed up for- our identical twin boys Charles and Ralph were diagnosed with CDKL5 deficiency disorder in September of 2021 when they were 6 months old. My intent is to keep family and friends updated as we begin our journey and fight for a cure, and to raise awareness for this rare genetic disorder. To learn more about CDKL5 visit www.cdkl5.com
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Showing posts from December, 2021